For nine years, I didn’t think of myself as “sick”. Life had become more focused, on woodworking and photography. I could still walk fairly well. Hiking was still possible, making photography possible.
The last 6 months everything has changed. I had several episodes of mental disorientation, culminating in a seizure which sent me to the hospital. There was much doubt if I was going to recover and be here writing this post right now. I did recover, sort of, but my brain was severely damaged. Memories have been wiped out. Complex thinking is very tough. Sometimes not possible. Day to day living is still possible. But now lists are essential to seeing things get done.
Esp tough is the fact Deborah has dementia. Lewy Body Disease. It’s a subset of dementia. Her memory is barely working. She is still able to do daily living tasks but her decline is noticeable and worrisome. All this makes me sad, but that doesn’t begin to describe what it is all like.
Right now I am pretty much responsible for everything: food prep, shopping, bills, appts, etc. Fortunately I’m still able to do all these things, but it feels like it’s only a matter of time.